Showing posts with label hospice. Show all posts
Showing posts with label hospice. Show all posts

Thursday, February 6, 2014

What Cancer is Really Like

I posted this lovely final family photo (Derek is sleeping/drugged, not the other thing) on instagram and Facebook this past week on World Cancer Day to bring about some awareness of what it really looks like. Derek did a great job at hiding his suffering, so much so that his own family were not aware how bad it was until it was the end. I wanted people to see that cancer is more than a disease--that it effected more than just Derek's health. It upended our life, it changed our family, and it was the center of our everything. Nothing could be done or planned without taking it into consideration. In fact, cancer had been apart of our family before Camden was.

I also wanted people to see the faces of families they are helping when they donate to the Susan Mortensen Turley Foundation. 100% of all proceeds go to families, since the foundation has no overhead.

People commented that this was a beautifully sad photo. It was one that encompassed both the sadness at Derek's final moments but the love that we shared with each other. I agree. Still sucks though.

Friday, October 11, 2013

Happy Anniversary To Us


"You're awake" she said, "Drink this, you will need all the energy you can get today".

I thanked her and sipped my orange juice. She looked at me intensely and then crouched next to the uncomfortable chair I had just slept in and said:

"I see people come and go from this ICU a lot. I've watched you two. You are the reason people get married, in the hopes that someone will love them no matter what. It is obvious you love each other a lot. You are lucky to have that, you are lucky to have each other".

I don't claim that Derek and I had/have a perfect marriage. What I do claim is that love was always in abundance. Through awful bad news, financial troubles, infertility, depression, and cancer, we could always turn to one another for support, friendship, and love.

Unable to speak, Derek wrote me this note.
I think of this day five years ago as we promised to be together forever. Even though we didn’t know it was cancer, we knew something was wrong and time was of the essence. So instead of crying tears of joy on our wedding day, I felt relief that I had made him mine forever. 

When he came home with hospice that day, I pulled our couch next to his bed and we held hands all night. It seemed an appropriate and necessary gesture that would have to hold us over until we could be together again. It is comforting to know that the love he gave me in 5 years is enough to last me a lifetime. 

I miss my partner in all things, the father of my child, and my best friend in the world. So on this day, the day we planned to be walking the beaches of Maui celebrating him being cancer free and our anniversary, I will honor our love in the best way I know how: by hugging our child extra tight and being grateful that our family is forever.